In this Nov. 19, 2019 photo provided by John Leyba shows Julia Vitarello visits her daughter Mila, who is fighting Batten disease, a rare fatal condition with no cure, in her room at Childrens Hospital in Aurora, Colo. Mila is the first person in the world to receive a drug customized for just one person. It was named Milasen. (John Leyba via AP)
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